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PCD Family Day- Minneapolis 8/23
PCD Family Day- Minneapolis 8/23
PCDF NCT RFA
PCDF NCT RFA
PCD On the Move Scientific Conference 2025
PCD On the Move Scientific Conference 2025
ATS PAR 'Patients and Experts Forum'
ATS PAR 'Patients and Experts Forum'
Learn more about primary ciliary dyskinesia. It's PCD week at the American Thoracic Society
Take Action - National Organization for Rare Disorders
Take Action - National Organization for Rare Disorders
Empower rare disease advocacy through strategic action steps, policy engagement, and community involvement. Discover how you can make a meaningful impact today.
Save the date for On the Move Scientific Conference 2025!
Save the date for On the Move Scientific Conference 2025!
PCD Awareness Month- webinar links
PCD Awareness Month- webinar links
Register for Airway Clearance webinar.
Register for Airway Clearance webinar.
Donate Now
Donate Now
Webinar 10/10 Register today!
Webinar 10/10 Register today!
PCD Awareness Month
PCD Awareness Month
Each year in October we come together for PCD Awareness Month – a dedicated time for PCD families, advocates and supporters of the PCD Foundation to raise awareness and funds […]
An Evening to Ignite the Future
An Evening to Ignite the Future
Participation in Clinical Trial Research Survey - Primary Ciliary Dyskinesia (PCD)
Participation in Clinical Trial Research Survey - Primary Ciliary Dyskinesia (PCD)
Fueling Research In PCD-Webinar Recording
Fueling Research In PCD-Webinar Recording
Learn more about the importance of research, including the crucial role of patients. ReCode will also share important updates on the RCT1100 study.
You are invited to join a webinar: Fueling Research in PCD: Updates from the PCDF and ReCode Therapeutics.
You are invited to join a webinar: Fueling Research in PCD: Updates from the PCDF and ReCode Therapeutics.
Serendipitous Drug Repurposing Through Social Media
Serendipitous Drug Repurposing Through Social Media
PCDF ATS PAR 2024 Patient & Expert Forum
PCDF ATS PAR 2024 Patient & Expert Forum
The PCD Foundation, in conjunction with the American Thoracic Society, will be holding a 'Patient & Expert' Forum May 18
Beat-PCD Newsletter Issue 8
Beat-PCD Newsletter Issue 8
Primary Ciliary Dyskinesia Over Time: What We’re Learning from Natural History Studies
Primary Ciliary Dyskinesia Over Time: What We’re Learning from Natural History Studies
Her Child Was Suffering, and Nobody Could Tell Her Why
Her Child Was Suffering, and Nobody Could Tell Her Why
She was a single working mom, but her daughter needed almost constant care. Told there was no solution, she took matters into her own hands.
White House Rare Disease Forum
White House Rare Disease Forum
PCD Week at ATS
PCD Week at ATS
Register today! ReCode Therapeutics Genetics Webinar January 19th
Register today! ReCode Therapeutics Genetics Webinar January 19th
¡Día de la Familia PCD Puerto Rico! PCD Family Day Puerto Rico!
¡Día de la Familia PCD Puerto Rico! PCD Family Day Puerto Rico!
Support Our Work- Donate Now
Support Our Work- Donate Now
PCD Awareness Month Education Series: Genetics email 2
PCD Awareness Month Education Series: Genetics email 2
Our PCD Stories Matter Story 2
Our PCD Stories Matter Story 2
PCD Awareness Month Education Series: Genetics
PCD Awareness Month Education Series: Genetics
Our PCD Stories Matter- Story 1
Our PCD Stories Matter- Story 1
PCD Awareness Month
PCD Awareness Month
Resources
Resource 1 NIH's Definition of a Clinical Trial | grants.nih.gov
Resource 1 NIH's Definition of a Clinical Trial | grants.nih.gov
Resource 2 Clinical Trials Glossary - Solving Kids' Cancer
Resource 2 Clinical Trials Glossary - Solving Kids' Cancer
Resource 3 CTG Labs - NCBI
Resource 3 CTG Labs - NCBI
Resource 4: Pipeline - ReCode Therapeutics
Resource 4: Pipeline - ReCode Therapeutics
Previous Links
Clear the Way PCDF t-shirt shop
Clear the Way PCDF t-shirt shop
Press Release: Parion Biosciences CLEAN PCD Study
Press Release: Parion Biosciences CLEAN PCD Study
Welcome! You are invited to join a webinar: Bronchiectasis in Primary Ciliary Dyskinesia (PCD). After registering, you will receive a confirmation email about joining the webinar.
Welcome! You are invited to join a webinar: Bronchiectasis in Primary Ciliary Dyskinesia (PCD). After registering, you will receive a confirmation email about joining the webinar.
Beat-PCD survey: 'Patients’ research priorities for primary ciliary dyskinesia'
Beat-PCD survey: 'Patients’ research priorities for primary ciliary dyskinesia'
GDMCC: Investigating the Role of Airway Inflammation in Children with Primary Ciliary Dyskinesia
GDMCC: Investigating the Role of Airway Inflammation in Children with Primary Ciliary Dyskinesia
Welcome! You are invited to join a webinar: Lung Health: Where Are We Going?. After registering, you will receive a confirmation email about joining the webinar.
Welcome! You are invited to join a webinar: Lung Health: Where Are We Going?. After registering, you will receive a confirmation email about joining the webinar.
PCDF ATS PAR 2023 Patient & Expert Forum
PCDF ATS PAR 2023 Patient & Expert Forum
What is a rare disease? - Rare Disease Day 2023
What is a rare disease? - Rare Disease Day 2023
PCD Foundation - Helping those affected by Primary Ciliary Dyskinesia
PCD Foundation - Helping those affected by Primary Ciliary Dyskinesia
Join us- 20th Anniversary event
Join us- 20th Anniversary event
PCD Awareness Month ideas
PCD Awareness Month ideas
2022 Move 4 A Cure 5-5-5 virtual race 8th annual
2022 Move 4 A Cure 5-5-5 virtual race 8th annual
Breathe for PCD t-shirts
Breathe for PCD t-shirts